Today is World Down Syndrome day and it makes sense that my blog revolves around my favorite individual with an extra something special. My oldest son, Bailey has Trisomy 21, the bonus chromosome that makes him undeniably unique. This celebration was created as a...
This week has been shitty......literally. My 89-year-old mother's sixty-year-old cast iron piping decided it had enough and decided to shit all over her basement. New piping was installed and today there is a professional cleaning crew coming so we can get the stench...
I am positive that no one is immune to the perils of social media unless you are not even participating. If that is the case, good for you. You have escaped the random creepy guy messages that pop up offering some pretty attractive deals. Now, my experience has been...
I can't believe that we have been dealing with this pandemic for a year. It has been a challenging, yet an eye-opening universal pause. If I had known that the social norms of society were going to evaporate and that we would no longer be allowed to embrace or even...
It hard to believe that we have been in this pandemic, or what I lovingly refer to as the universal hostage situation. It's crazy to think how quickly our lives changed and how adapting to a new norm has been imperative. And now, here we are, with the vaccine giving...
I feel like we have come full circle in so many ways. Bailey received his first dose of the vaccine on Saturday. A big step in reclaiming his life, and for the first time in a while, I felt hopeful. The timing is a bit serendipitous, since March 21 is World Down...
I honestly didn't know what to expect. I didn't pay attention. I ignored the signs that this would be an epic explosion and, it was, indeed. Wednesday night, I struggled with sleep. It happens. My brain is a squirrel cage where it becomes fight night at the moment I...
This has been a very long pandemic. Our lives are forever changed due to this virus that has been holding us hostage. Nothing is normal. Everything is socially awkward and frankly, I could go the rest of my life without hearing the words "pandemic", "Covid-19",...
I feel like this has been the longest weekend of the century. The euphoria from my first book signing was overshadowed as my mother bucks the idea of a nighttime caregiver. You see, I am currently the parent of a 89-year-old woman with a three year old attitude. It...
Yesterday, I ventured downstairs to workout. I had churned out 2000 words for my new book, My Turn, and was ready to have my brain relax. My typical routine is to stop at our laundry room to put my spouse's work clothes in the dryer and then proceed to care for our...
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