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I had no idea my son, Bailey had Down syndrome until he was born. My risk was low and I was 27. Being a parent is hard enough, but when you pour a diagnosis on top of it, well, there are challenges, complications, and disappointments. That’s the hard stuff, but the magic that my son projects out into the world silences the rest.

The resources listed below are lifelines. Even if you aren’t a parent to a child with Down syndrome, having knowledge is power. Maybe it will allow you to provide a job opportunity or more acceptance into your community. If you are the lucky parental figure of one of these special individuals, I welcome you and am happy to share my experience strength and hope. You aren’t in this alone.

National Down Syndrome Society

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. We envision a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.

National Down Syndrome Congress

The National Down Syndrome Congress (NDSC) is a not-for-profit organization dedicated to an improved world for individuals with Down syndrome. NDSC’s mission is to provide information, advocacy, and support concerning all aspects of life for individuals with Down syndrome. The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.